Health Insights

February 19, 2021February 19, 2021

XLH and Advocacy

Health Insights

Health advocacy — that of patients, families, friends, caregivers, and supporters — can help to improve the accessibility and quality of care available to you and those with X-linked hyperphosphatemia ... Read more

February 12, 2021February 12, 2021

XLH and the Kidneys

Health Insights

X-linked hypophosphatemia (XLH), which results from a loss of phosphate from the kidneys, is known to lead to muscle weakness, muscle pain, and problems with the bones and teeth. But ... Read more

February 5, 2021February 5, 2021

Your Multidisciplinary XLH Treatment Team

Health Insights

Given the disparate symptoms that can occur in X-linked hypophosphatemia (XLH) — including bone abnormalities, muscle weakness, and pain — it’s important to coordinate between a multidisciplinary team of physicians ... Read more

January 29, 2021January 29, 2021

Myths and Facts About XLH

Health Insights

Like most rare conditions, X-linked hypophosphatemia (XLH) is a complicated disorder that many people may not fully understand. There are both myths and facts about the progressive, inherited disease. Here, ... Read more

January 22, 2021January 22, 2021

Respite Care for Families Affected by XLH

Health Insights

Providing constant care to a person who has X-linked hypophosphatemia (XLH) can be depleting emotionally, mentally and physically. Sooner or later, you must replenish your reserves. Respite care for families affected ... Read more

January 15, 2021January 15, 2021

Paramedical Care for XLH Patients

Health Insights

If you or your child has a chronic disease such as X-linked hypophosphatemia (XLH) you may benefit from paramedical treatments. Following is a look at some of the ways such ... Read more

December 18, 2020December 18, 2020

Recreational Therapy for XLH Patients

Health Insights

Living with a chronic disorder such as X-linked hypophosphatemia (XLH) can lead to anxiety, stress, and feelings of isolation. Recreational therapy may help to improve your or a family member’s ... Read more

December 11, 2020December 11, 2020

Sleep Hygiene for XLH Patients

Health Insights

Patients with X-linked hypophosphatemia (XLH) may experience sleep problems. Good quality sleep is essential to maintain physical and mental health. It may be helpful to practice sleep hygiene to improve ... Read more

November 13, 2020November 13, 2020

The International XLH Registry

Health Insights

If you or your child received a diagnosis of X-linked hypophosphatemia (XLH), you may want to consider enrolling in the XLH Registry. The information collected in this registry helps researchers ... Read more

November 6, 2020November 9, 2020

XLH and Sleep

Health Insights

X-linked hypophosphatemia (XLH) is a rare genetic disorder caused by mutations in the PHEX gene that results in the loss of phosphate through the kidneys, affecting patients’ bones and teeth. ... Read more