Health Insights

December 18, 2020December 18, 2020

Recreational Therapy for XLH Patients

Health Insights

Living with a chronic disorder such as X-linked hypophosphatemia (XLH) can lead to anxiety, stress, and feelings of isolation. Recreational therapy may help to improve your or a family ... Read more

December 11, 2020December 11, 2020

Sleep Hygiene for XLH Patients

Health Insights

Patients with X-linked hypophosphatemia (XLH) may experience sleep problems. Good quality sleep is essential to maintain physical and mental health. It may be helpful to practice sleep hygiene to ... Read more

November 13, 2020November 13, 2020

The International XLH Registry

Health Insights

If you or your child received a diagnosis of X-linked hypophosphatemia (XLH), you may want to consider enrolling in the XLH Registry. The information collected in this registry helps ... Read more

November 6, 2020November 9, 2020

XLH and Sleep

Health Insights

X-linked hypophosphatemia (XLH) is a rare genetic disorder caused by mutations in the PHEX gene that results in the loss of phosphate through the kidneys, affecting patients’ bones and ... Read more

October 30, 2020October 30, 2020

Just Received an XLH Diagnosis, Now What?

Health Insights

A diagnosis of X-linked hypophosphatemia (XLH) is the start of a lifelong journey. Here is some information about this disease and what you might expect. About XLH XLH is ... Read more

October 23, 2020October 23, 2020

Mindfulness for Adults With XLH

Health Insights

The symptoms of X-linked hypophosphatemia (XLH) in adults can present real challenges to everyday life. Mindfulness is a technique that may help you manage those challenges. What is mindfulness? ... Read more

October 16, 2020October 16, 2020

Independent Living for Adults With XLH

Health Insights

Living alone with a chronic disease such as X-linked hypophosphatemia (XLH) can be challenging. Here are some points to consider that may help you continue to live well and ... Read more

October 9, 2020October 9, 2020

Hearing Impairment and XLH

Health Insights

Patients with X-linked hypophosphatemia (XLH) may experience hearing impairment or loss. The following information addresses ways in which XLH may affect hearing and how doctors treat the problems. How ... Read more

October 2, 2020October 2, 2020

Things to Ask a Genetic Counselor About XLH

Health Insights

If you are set to meet with a genetic counselor regarding an X-linked hypophosphatemia (XLH) diagnosis, you probably have a number of questions running through your head but aren’t sure ... Read more

September 25, 2020September 25, 2020

How to Talk to Your Doctor About XLH

Health Insights

If you have a doctor who is knowledgeable about X-linked hypophosphatemia (XLH), you should make the most of your visits, particularly in the weeks and months following your diagnosis. ... Read more