Health Insights

June 26, 2020June 26, 2020

Clinical Trials for XLH

Health Insights

There currently is no cure for X-linked hypophosphatemia (XLH) and not many options for treating the disease’s symptoms. That’s why clinical trials are so important as scientists work to develop ... Read more

June 19, 2020June 19, 2020

Planning for the Future When You Have a Child With XLH

Health Insights

Caring for a child with X-linked hypophosphatemia (XLH) can be overwhelming. Worrying about what might happen if your child outlives you, or you become disabled, can be stressful. Here ... Read more

June 5, 2020June 5, 2020

Spoon Theory for XLH Caregivers

Health Insights

Caring for a child who has X-linked hypophosphatemia (XLH) can be draining. You’re dealing with a rare disease characterized by weakened bones and teeth, possible fractures and dental abscesses, muscle ... Read more

May 29, 2020May 29, 2020

Warning Signs of Depression in People with XLH

Health Insights

Living with a chronic disease, such as X-linked hypophosphatemia (XLH), can be very stressful. You may feel as if you’ve lost control of your life, a major source of anxiety. Some ... Read more

May 15, 2020May 15, 2020

Tips for Staying Motivated with a Chronic Disease Like XLH

Health Insights

When you’re living with a rare and progressive disorder like X-linked hypophosphatemia (XLH), with its myriad of potential symptoms, you may find it difficult to stay motivated. Here are some ... Read more

May 8, 2020May 8, 2020

How to Deal with Pseudofractures in XLH

Health Insights

X-linked hypophosphatemia (XLH) is a rare genetic disease characterized by low phosphate levels in the blood. As a result, patients’ bones may be weak and fracture easily. The severity ... Read more

April 24, 2020April 24, 2020

What Is the XLH Disease Monitoring Program?

Health Insights

X-linked hypophosphatemia (XLH) is a rare genetic disease characterized by low levels of phosphate in the blood. Because XLH is so rare, and symptoms can vary so much among ... Read more

April 17, 2020April 17, 2020

Individualized Education Program for Children with XLH

Health Insights

X-linked hypophosphatemia (XLH) is a progressive inherited disorder that can affect children‘s proper bone development and result in fractures and other complications, including delayed growth and short stature. Your child ... Read more

April 10, 2020April 10, 2020

Tips for XLH Caregivers

Health Insights

A person who has a rare genetic disorder such as X-linked hypophosphatemia (XLH) may require frequent help from a caregiver to accomplish everyday tasks. As a caregiver, you often may ... Read more

April 2, 2020April 3, 2020

Five Tips to Make the Most of Your Doctor’s Visit When You Have XLH

Health Insights

Effectively managing treatment and care for a rare disease such as X-linked hypophosphatemia (XLH) can be challenging. So, when you go to your doctor it is important to be prepared for a ... Read more

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