FAQs

FAQs About Hemiepiphysiodesis for XLH

Hemiepiphysiodesis or guided growth is a surgical technique used to gradually correct angular deformities, such as bow legs, in the still-growing bones of children with X-linked hypophosphatemia (XLH). During a minimally invasive procedure, surgeons apply a plate to a crooked bone, allowing it to straighten as the child…

FAQs About Crysvita for XLH

Crysvita (burosumab) is a treatment for people with X-linked hypophosphatemia (XLH) developed by Kyowa Kirin and Ultragenyx. It is the only U.S. Food and Drug Administration-approved treatment for XLH that targets the underlying cause of the progressive inherited disorder. The following are some frequently asked…

FAQs About X-Rays

X-ray imaging is a commonly used tool in the diagnosis of X-linked hypophosphatemia (XLH), a rare genetic disorder characterized by low phosphate levels in the blood. This article answers some of the frequently asked questions (FAQs) about X-rays and how they can be useful in diagnosing…

FAQs About XLH

Being diagnosed with rare genetic diseases, such as X-linked hypophosphatemia (XLH), can often leave patients and their caregivers worried and overwhelmed. To help alleviate some confusion, we present answers to some of the most frequently asked questions about XLH. What is XLH? XLH is a genetic disorder that occurs…