Given the disparate symptoms that can occur in X-linked hypophosphatemia (XLH) — including bone abnormalities, muscle weakness, and pain — it’s ... Read more
Like most rare conditions, X-linked hypophosphatemia (XLH) is a complicated disorder that many people may not fully understand. There are both ... Read more
Providing constant care to a person who has X-linked hypophosphatemia (XLH) can be depleting emotionally, mentally and physically. Sooner or later, you ... Read more
Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and dedication. ... Read more
If you or your child has a chronic disease such as X-linked hypophosphatemia (XLH) you may benefit from paramedical treatments. Following ... Read more
The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to speak at ... Read more
Hemiepiphysiodesis or guided growth is a surgical technique used to gradually correct angular deformities, such as bow legs, in the still-growing ... Read more
