About BeyondXLH

If you or your child have X-linked hypophosphatemia (XLH), you might want to consider enrolling in the online disease-monitoring program BeyondXLH. Because XLH is so rare, and its symptoms can vary greatly, it’s difficult to predict how the disease will progress, and what treatments will be best…

What Is the XLH Disease Monitoring Program?

X-linked hypophosphatemia (XLH) is a rare genetic disease characterized by low levels of phosphate in the blood. Because XLH is so rare, and symptoms can vary so much among patients, it’s very hard to predict what medications will be most effective for any one person, and how…