Tips for Managing Fatigue When You Have XLH

Patients with X-linked hypophosphatemia (XLH) commonly report symptoms of fatigue, pain and stiffness. Feeling fatigued can make work, school, and daily tasks more challenging to manage.

Here are some tips for managing fatigue:

Keep track of your energy levels

Keeping a log of your symptoms throughout the day can help you identify which tasks wear you out, and help you notice when you are starting to feel fatigued.

Take breaks when needed

Rest when you need to rest. If you have a lot to do in a day, plan time for rest between tasks. Notice when you start to feel fatigued and rest before you are exhausted so that it takes less time to recharge.

Try to break up to-do lists into smaller tasks that can be spread out over a day or a week. Don’t overdo it.

Stay active

It may seem counterintuitive, but regular exercise like walking, stretching, and yoga can help you feel more energized. Talk with your physiotherapist before starting a new exercise routine to make sure you will not put too much strain on your bones and joints.

Eat a healthy diet

Eating a healthy diet gives people the fuel they need to feel more energetic and minimize fatigue. Talking to a registered dietitian can help you come up with a healthy meal plan that you will enjoy.

Get enough sleep

The National Sleep Foundation recommends that adults get seven to nine hours of sleep a night, though some individuals may need more or less to feel rested. Chronic pain can make it hard to get enough quality sleep.

It’s a good idea to avoid caffeine and alcohol, as both can interfere with sleep. You also should make the hour before bed an “electronics-free” time when you avoid using your, TV, computer or phone.

Get expert advice

Fatigue is a symptom of XLH that affects quality of life. Talk to your physician and care team to find out what they recommend to treat and manage this symptom.

Last updated: July 14, 2020

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XLH News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health providers with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.